Results 1 to 7 of 7

Thread: psoriatic arthirtis

  1. #1
    Join Date
    Sep 2010
    Location
    Cottesmore
    Posts
    363

    Default psoriatic arthirtis

    i was diagnosed with this about 8 months ago and i have ridden a handful of time. I've had to give up my section D because i couldnt exercise him to the degree he needed (he was a loan)
    i've got a youngster now, he is 2, and i can just cope with him, because short spurts of in hand work i can cope with.
    baisically my feet, hips and back are my mine areas of trouble, with my hands being effected only in severely cold weather.
    can any one give me and help or advice as to what i can take (checking with my specialist of course) or do to help the pain and the movement so i can get back to my normal riding routine.
    I rode for about 15 mins the other day for a friend and did one 2 ft jump, i was exhausted when i was back on the ground and my legs back and hips were in agony for all of the next day. i'm so fed up with this disease !!!! any advice is gladly recieved!!
    oh yeah im on 20mg of methetrexate, cocodamol as and when and 25mg of folic acid and i've just been given a new drug to mix with my methetrexate but i cant remember the name haha

  2. #2
    Join Date
    Apr 2010
    Location
    Wistow SA
    Posts
    207

    Default

    do u get a thing called elmore oil over there? i use it here and its at least takes the edge off somedays if not its not very expensive and i could probably get u a bottle and post it over. i think u can do that? i cant take any medications for pain so ive got to live with it i understand how u feel tho. ive got chronic regional pain syndrome type 2, and sits progressive so starting to get teh changes for stage 3. fibromyalgia, median nerve damage, carpal tunnel, over use of left hand, tendon something or other. all from surgery for carpal tunnel bony arthritic changes come with it. elmore oil is one of te only creams i find helps. ill see if i can google it so u can check it out. http://www.elmoreoil.com.au/ u can purchase it thru ths site too i think. good luck, and sorry to hear the pain ur in

  3. #3
    Join Date
    Sep 2010
    Location
    Cottesmore
    Posts
    363

    Default

    Thanks firestorm, i've just had a look and ordered some. Sounds really good so fingers crossed this will give me some relief!
    i hope you start to feel better as well, is there a reason you cant take painkillers, if you dont mind me asking?

  4. #4
    Join Date
    Oct 2009
    Location
    Wales
    Posts
    1,148

    Default

    Psychopony

    I have a form of sero-negative arthritis. Of which, psoriatic is a form.

    Do you suffer from psoriasis?

    I was diagnosed with psoriatic arthritis but it appears I may have been wrongly diagnosed, although we do think it is a similar type of arthritis that I suffer from.

    Where have you been affected most in your body?

    Psoriatic arthritis tends to be symmetrical (but not always).

    I have avoided methotrexate due to the side effects - check these out as they can be quite serious! Although I appreciate that if you are in excrutiating pain then the drug may be unavoidable. I survived on anti-inflammatories for a couple of years with pain killers. I don't take anything at all for it now.

    I find that it flares up, some days will be terrible but other days i won't have any problems. My symptoms have almost gone now and I am just left with achilles tendonitis.

    Can I ask how long it is since you first began your symptoms?

    My arthritis has neve stopped me riding - on the contrary I was riding 5 days a week at one point!

    I suppose it depends what joints have been affected, my feet and knees have been affected and so riding hasn't really been impacted. I would imagine back pain would perhaps prevent you from riding.

    Good luck with ur PA, there is a great online forum for sufferers called 'psoriasis online' or something similar which has a whole forum dedicated to psoriatic arthritis.

    Hope this helps

    WP

  5. #5
    Join Date
    Sep 2010
    Location
    Cottesmore
    Posts
    363

    Default

    hi, i was only diagnosed in march when i was admitted to hospital because i was in so much pain and my knees wouldngt hold my weight from pain. I ended up in hospital because the doctors couldnt work out what was wrong.
    i've had psoriasis since i was 3 never major, mainly on my scalp currently but was on my arms legs and torso when i was younger.
    my main problem areas with psoriatic are my hips, knees and lower back, then of course the exhaustion and fatigue, which i feel is the worst part of it.
    I'm trying to get back in my riding but my leg and stomach muscles have deteriorated quite alot in the last sixth month, so im having physio at the moment. My othe rproblem is the tiredness, 10 minutes after im out the saddle and knackered!!
    I've been offered a coupl of other meds but i dont really want to take them because they stay in my system for so long after you stop, 1 to 2 years for one of them and i'm hoping(fingers crossed) to start a family in the next year or so, so at the moment even though the side effects are very very annoying (nausea being the worst i get) it seems the best for me.
    how long have you had your arthritus for? do you suffer the exhaustion as part of your's?

    x

  6. #6
    Join Date
    Apr 2010
    Location
    Wistow SA
    Posts
    207

    Default

    i hope u feel as wonderful as u can. try keep riding as is great physio too. and helps. u sounds like me and need a lot of help to saddle up too!

    i cant take painkillers or any medications that may help as i have nasty adverse reactions to pretty much everything. i take childrens nerofen but its not enough normally. i have tied many, but they never work out. my throat sweels up. which is realy scary. or i get very ill. heart rate skyrockets and gets very strange. ive always been like that with medications tho.

    glad to hear u have ordered some elmore oil it is magic stuff

  7. #7
    Join Date
    Sep 2010
    Location
    Cottesmore
    Posts
    363

    Default

    the elmore oil is fantastic, perfect for use on my lower back and hips while im doing my physio or in the saddle totally fab!!

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •